Saturday, 20 September 2014

The most terrifying thing about Ebola

As the Ebola epidemic in West Africa has spiraled out of
control, affecting thousands of Liberians, Sierra Leonians, and
Guineans, and threatening thousands more, the world's
reaction has been glacially, lethally slow. Only in the past few weeks have
heads of state begun to take serious notice. To date, the virus has killed more
than 2,600 people. This is a comparatively small number when measured
against much more established diseases such as malaria, HIV/AIDS, influenza,
and so on, but several factors about this outbreak have some of the world's
top health professionals gravely concerned:
• Its kill rate: In this particular outbreak, a running tabulation suggests that 54
percent of the infected die, though adjusted numbers suggest that the rate is
much higher.
• Its exponential growth: At this point, the number of people infected is
doubling approximately every three weeks, leading some epidemiologists to
project between 77,000 and 277,000 cases by the end of 2014.
• The gruesomeness with which it kills: by hijacking cells and migrating
throughout the body to affect all organs, causing victims to bleed profusely.
• The ease with which it is transmitted: through contact with bodily fluids,
including sweat, tears, saliva, blood, urine, semen, etc., including objects that
have come in contact with bodily fluids (such as bed sheets, clothing, and
needles) and corpses.
• The threat of mutation: Prominent figures have expressed serious concerns
that this disease will go airborne, and there are many other mechanisms
through which mutation might make it much more transmissible.
Terrifying as these factors are, it is not clear to me that any of them capture
what is truly, horribly tragic about this disease.
The most striking thing about the virus is the way in which it propagates.
True, through bodily fluids, but to suggest as much is to ignore the conditions
under which bodily contact occurs. Instead, the mechanism Ebola exploits is
far more insidious. This virus preys on care and love, piggybacking on the
deepest, most distinctively human virtues. Affected parties are almost all
medical professionals and family members, snared by Ebola while in the
business of caring for their fellow humans. More strikingly, 75 percent of
Ebola victims are women, people who do much of the care work throughout
Africa and the rest of the world. In short, Ebola parasitizes our humanity.
More than most other pandemic diseases (malaria, cholera, plague, etc.) and
more than airborne diseases (influenza, swine flu, H5N1, etc.) that are
transmitted indiscriminately through the air, this disease is passed through
very minute amounts of bodily fluid. Just a slip of contact with the infected
party and the caregiver herself can be stricken.
The images coming from Africa are chilling. Little boys, left alone in the
street without parents, shivering and sick, untouchable by the throngs of
people around them. Grown men, writhing at the door to a hospital, hoping
for care as their parents stand helplessly, wondering how to help. Mothers
and fathers, fighting weakness and exhaustion to move to the edge of a tent
in order to catch a distant, final glimpse of a get-well video that their children
have made for them.
If Ebola is not stopped, this disease can destroy whole families within a
month, relatives of those families shortly thereafter, friends of those relatives
after that, and on and on. As it takes hold (and it is taking hold fast), it cuts
out the heart of family and civilization. More than the profuse bleeding and
high kill rate, this is why the disease is terrifying.
Aid providers are now working fastidiously to sever these ties themselves,
fighting hopelessly against the natural inclinations that people have to love
and care for the ill. They have launched aggressive public information
campaigns, distributed updates widely, called for more equipment and gear,
summoned the military, tried to rein in the hysteria, and so on. Yet no sheet
of plastic or latex can disrupt these human inclinations.
Such heroic efforts are the appropriate medical response to a virulent public
health catastrophe. The public health community is doing an incredible job,
facing unbelievable risks, relying on extremely limited resources. Yet these
efforts can only do half of the work. Infected parties-not all, to be sure, but
some (enough)-cannot abide by the rules of disease isolation. Some will act
without donning protective clothing. Some will assist without taking proper
measures. And still others will refuse to enter isolation units because doing so
means leaving their families and their loved ones behind, abandoning their
humanity, and subjecting themselves to the terror of dying a sterile, lonely
death.
It is tempting, at these times, to focus on the absurd and senseless actions of a
few. One of the primary vectors in Sierra Leone is believed to have been a
traditional healer who had been telling people that she could cure Ebola. In
Monrovia a few weeks back, angry citizens stormed a clinic and removed
patients from their care. "There is no Ebola!" they are reported to have been
shouting. More recently, the largest newspaper in Liberia published an article
suggesting that Ebola is a conspiracy of the United States, aimed to undermine
Africa. And, perhaps even more sadly, a team of health workers and
journalists was just brutally murdered in Guinea. It is easy, in other words,
to blame the spread on stupidity, or illiteracy, or ritualism, or conspiracy
theories, or any number of other irrational factors.
But imagine: You are a parent whose child has suddenly come ill with a
fever. Do you cast your child away and refuse to touch him? Do you cover
your face and your arms? Stay back! Unclean! Or do you comfort your child
when he asks for you, arms outstretched, to make the pain go away?
Imagine: You live in a home with five other family members. Your sister
falls ill, ostensibly from Ebola, but possibly from malaria, typhoid, yellow
fever, or the flu. You are aware of the danger to yourself and your other
family members, but you have no simple means to move her, and she is too
weak to move herself. What do you do?
Imagine: You are a child of 5 years old. Your mother is sick. She implores
you to back away. But you are scared. What you need, more than anything,
is a hug and a cry.
Who can blame a person for this? It is a terrible, awful predicament. A
moral predicament. To stay, comfort, and give love and care to those who are
in desperate need, or to shuttle them off into an isolation ward, perhaps
never to see them again? What an inhumane decision this is.
What makes the Ebola virus so terrifying is not its kill rate, its exponential
growth, the gruesome way in which it kills, the ease of transmission, or the
threat of mutation, but rather that people who care can do almost nothing but
sit on the sidelines and watch.
* * *
Many have asked whether Ebola could come here, come West. (The
implication, in its way, is crass-as if to suggest that we need not be concerned
about a tragedy unless it poses a threat to us.) We have been reassured that it
will never spread widely here, because our public health networks are too
strong, our hospitals too well-stocked. The naysayers may be right about this.
But they are not right that it does not pose a threat to us.
For starters, despite the pretense, the West is not immune from absurd,
unscientific thinking. We have our fair share of scientific illiteracy,
skepticism, ritualism, and foolishness. But beyond this, it is our similarities,
not our differences, that make us vulnerable to this plague. We are human.
Every mechanism we have for caring-touching, holding, feeding, playing,
warming, comforting, caressing-every mechanism that we use to bind us to
our families and our neighbors, is preyed upon by Ebola. We cannot seal
each other into hyperbaric chambers and expect that once we emerge, the
carnage will be over. We are humans, and we will care about our children
and our families even if it means that we may die in doing so.

The lesson here is a vital one: People do not give up on humanity so very
easily. Even if we persuade all of the population to forgo rituals like washing
the dead, we will not easily persuade parents to keep from holding their sick
children, children from clinging to their ailing parents, or children from
playing and wrestling and slobbering all over one another. We tried to alter
such behaviors with HIV/AIDS. A seemingly simple edict-"just lay off the sex
with infected parties"-would seem all that is required to halt that disease. But
we have learned over the decades that people do not give up sex so readily.
If you think curtailing sex is hard, love and compassion will be that much
harder. Humans will never give this up-we cannot give this up, for it is
fundamental to who we are. The more that medical personnel require this of
people without also giving them methods to manifest care, the more care and
compassion will manifest in pockets outside of quarantine. And the more
humanity that manifests unchecked, the more space this virus has to grow.
Unchecked humanity will seep through the cracks and barriers that we build
to keep our families safe, and if left to find its own way, will carry a lethal
payload.
The problem is double-edged. Ebola threatens humanity by preying on
humanity. The seemingly simple solution is to destroy humanity ourselves-to
seal everything off and let the disease burn out on its own. But doing so
means destroying ourselves in order to save ourselves, which is no solution
at all.
We must find a method of caring without touching, of contacting without
making contact. The physiological barriers are, for the time being, necessary.
But we cannot stop people from caring about one another, so we must create,
for the time being, mechanisms for caring. Since we will never be able to
beat back humanity, we must coordinate humanity, at the family level, the
local level, and the global level.
The only one way to battle a disease that affixes itself parasitically to our
humanity is to overwhelm it with greater, stronger humanity. To immunize
Africa and the rest of the world with a blast of humanity so powerful that the
disease can no longer take root. What it will take to beat this virus is to turn
its most powerful vehicle, our most powerful weapon, against it.

Donate to the great organizations that are working tirelessly to bring this
disease under control. They need volunteers, medical supplies, facilities,
transportation, food, etc. Share information about Ebola, so people will learn
about it, know about it, and know how to address it when it comes. And
inform and help others. It is natural at a time of crisis to call for sealing the
borders, to build fences and walls that separate us further from outside
threats. But a disease that infects humanity cannot easily be walled off in this
way. Walling off just creates unprotected pockets of humanity, divisions
between us and them: my family, your family; that village, this village;
inside, outside.

One final thing.
When Prince Prospero, ill-fated protagonist of Edgar Allan Poe's story The
Masque of the Red Death , locked himself in his castle to avoid a contagion that
was sweeping his country-a disease that caused "profuse bleeding at the
pores"-he assumed mistakenly that the only reasonable solution to his
problem was to remove himself from the scene. For months he lived lavishly,
surrounded by courtiers, improvisatori, buffoons, musicians, and wine,
removed from danger while the pestilence wrought havoc outside.
As with much of Poe's writing, Prospero's tale does not end well. For six
months, all was calm. He and his courtiers enjoyed their lives, secure and
isolated from the plague laying waste to the countryside. Then, one night
during a masquerade ball, the Red Death snuck into the castle, hidden behind
a mask and a cloak, to afflict Prospero and his revelers, dropping them one
by one in the "blood-bedewed halls." Prospero's security was a façade,
leaving darkness and decay to hold "illimitable dominion over all." The
eventual intrusion that would be his undoing foretells of a danger in believing
that we can keep the world's ills at bay by keeping our distance.
If we seek safety by shutting out the rest of the world, we are in for a
brutally ugly awakening. Nature is a cruel mistress, but Ebola is her
cruellest, most devious trick yet.

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